The impetus to create the organization came from parents of local chapters and professionals from the regional spina bifida centers concerned about the unmet needs of their children and adults with spina bifida. The organizers met in 1993 and began an effort to create a regional organization to provide coordinated medical, educational, vocational and social services to individuals with spina bifida. In 1997, CPSB became a 501(c) 3 organization serving individuals with spina bifida and their families in Maryland, Virginia and the District of Columbia.

The organization's mission is "to support the needs of individuals with spina bifida and related conditions and their families." Programs and services reflect the association's goals:

  • To enable children, youth and adults with spina bifida to maximize their potential for educational achievement, employment, independence and a healthy life.
  • To significantly reduce the incidence of spina bifida and related conditions,
  • To assure that all individuals with spina bifida have opportunity and support needed to live successful and independent lives
  • To enable families of individuals with spina bifida to receive care-giving support from each other.
  • To assure that individuals with spina bifida and related conditions receive entitled medical, educational and vocational services.

The organization provides a support network, information exchange and direct services to 1000 individuals and their families in Maryland, Virginia, and the District of Columbia.

For more information about our programs and services, go to Programs and Services.

If you are interested in becoming a member of the Chesapeake-Potomac Spina Bifida, go to Membership Information.