This page is a compilation of information and resources intended to be a service to individuals with spina bifida and their families. Inclusion of the Web sites below does not imply endorsement. Any medical or health care reference is intended for informational purposes only.
Bifida and Related Disorders
Hydrocephalus Association of America - Provides support, education, resources for individuals, families and professionals
Kennedy Krieger Institute - is an internationally recognized facility dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training. The Philip A. Keelty Center for Spina Bifida and Related Conditions serves children and adults with spina bifida.
Latex Allergy Links - A comprehensive listing of latex allergy related sites on the Internet. It also includes articles and practical information about latex allergy.
National Center for Learning Disabilities - Provides information and publications about learning disabilities
Spina Bifida Association of America - Provides medical, research, educational updates and publications
- a discussion board on a variety of topics from health to fashion, forums and blogs for individuals with spina bifida.
Bifida.Net - Provides general information about spina bifida
and links to information
Spina Bifida.Net - Provides general information about spina bifida and links to information
bifida-l - List serve started in 1995 at Dakota State University. Currently has over 300 members
and Healthcare Professional Council's (NHPC) ListServ
sb_adults - List serve for adults with spina bifida age 18 and over
SB Teens - List serve on the Internet for teens with spina bifida
Spina Bifida Central - A club for individuals with spina bifida: chat room, message board, and news
Spina Bifida Connection - A Free online discussion group for individuals affected by spina bifida.
and Adult Alliance (YAA) ListServ
Family Village - A global community that integrates information, resources and communication opportunities on the Internet for persons with cognitive and other disabilities; includes information on specific diagnoses, adaptive products and technology, adaptive recreational activities, and literature.
National Center on Physical Activity and Disability - a national organization that publishes online monthly newsletter, national and regional resources on physical activity and disability.
National Spinal Cord Injury Association - a national organization with national and local resources, conferences, research on spinal cord injury and disease.
Delivery Incontinent Supplies Co.
Coast Rehab, LLC
Mobility Solutions, Inc.
Spina Bifida, Inc.