Programs and Services
Spina Bifida Association has initiated the following services:
- Support Network
and Information Exchange - In order to increase the ability
of families of individuals with spina bifida to better manage their
child's care, a support network and information exchange between
parents and the association was established.
Individuals with spina bifida and their families can receive information
and referral services from the association by calling 1-888-733-0988.
The association publishes a quarterly newsletter, The Spinal Column
that includes information about the association's services, resources,
medical and legislative updates, information about our local chapters'
activities. If you would like to read The Spinal Column,
click on e-newsletter.
Support - Parents can receive support and exchange information
through our local chapter network. For more information, go to About
Our Local Chapters.
- Special Needs
Fund - Through grant funding, the association has established
a Special Needs Fund to provide financial assistance to individuals with spina bifida in Maryland, Virginia and the District of Columbia
for unsupported medical costs and support services. To apply, click on Special Needs Fund Application
Conference - to provide individuals with
spina bifida, their families and health care providers updates on
current best practices in the diagnosis, treatment and prevention
of spina bifida.
- New Parent
Visitation Program - The association provides informational
kits to new parents of children born with spina bifida. Parent volunteers
from local chapters are available to meet with new parents.
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